The Every Woman Study
The Every Woman StudyTM Low-and Middle-Income Edition
A joint initiative of the World Ovarian Cancer Coalition (Coalition) and the International Gynecologic Cancer Society (IGCS).
In 2018, the Coalition conducted the Every Woman StudyTM, the largest ever survey of women living with the disease. Over 1500 women from 44 countries responded, and the results have been presented at a number of international scientific meetings and published in the International Journal of Gynecological Cancer. This first survey mainly captured data from high-income countries.
The 2018 Study led to the development of the Global Ovarian Cancer Charter, outlining opportunities to make progress through the Charter’s six Global Goals.
To bridge the data gap from the first Study, the Coalition is partnering with IGCS to organize a ground-breaking low- and middle-income edition of the Every Woman Study™️. IGCS has been involved in this effort for the past year with IGCS CEO Mary Eiken (USA) and IGCS Member, Tracey Adams (South Africa) serving on the oversight committee. IGCS’ regional Strategic Alliance Partner groups and contacts from our Global Curriculum training sites have been receptive to our requests to help distribute the study to their patients.
With active interest from 31 countries, national leads, local leaders, administrators, and advocates will work on the ground to ensure optimal participation from women in their countries, resulting in an unprecedented data set that will help shape and guide local, regional, and national advocacy efforts in the hopes of reaching the Coalition’s goal of no woman being left behind.
Our hope is that the LMIC edition of the study will bring new insights and increase global collaboration to improve survival and quality of life for those affected by ovarian cancer.
The Every Woman Study™ Low and Middle-Income Edition is currently being translated into over 40 languages and undergoing ethics reviews. Data collection is expected to be conducted throughout the year with analysis beginning in 2023.
Join us May 5th for the IGCS Virtual Patient Perspectives Roundtable: Overcoming Barriers to Genetic Testing in Ovarian Cancer. Speakers and panelists will bring their expertise and perspectives on genetic testing for ovarian cancer and discuss ways to we can advocate to overcome barriers, concerns, and challenges in this area.
With World Ovarian Cancer Day (May 8th) falling on the same day that many countries celebrate Mother’s Day this year, what a special occasion and event to bring the patient advocacy community together to talk openly about this important issue.
Participating in the 10th World Ovarian Cancer Day couldn’t be easier!
It can be as simple as a social media post, encouraging others to learn and share information about ovarian cancer. Maybe you want to have a Teal event with friends or colleagues? Get everyone to have some fun with teal outfits and accessories – and, of course, post it for more awareness. Create your own signs, posters, etc., with the WOCC’s downloadable graphics, and then add your personal touch. By taking part in World Ovarian Cancer Day, you can help change the future of this disease by increasing awareness of symptoms and the need for more research. Together, we can reach our goal of #NoWomanLeftBehind
Download the #WOCD2022 Get Involved Guide on ways you can engage with this year’s campaign.