
Our annual patient- and advocate-focused event invites the advocacy community to learn about and discuss topics of importance to gynecologic cancer survivor-patients, their caregivers and family members, and all those dedicated to patient advocacy and activism.
2025 IGCS-IGCAN Gynecologic Cancer Survivor-Caregiver Summit
Virtual
Saturday, September 27 from 1:00 PM – 5:00 PM UTC
Program Topics
Our program features three powerful and thought-provoking topics, each explored through expert presentations and engaging panel discussions:
- Grassroots Advocacy in Gynecologic Cancers
- Patient and Advocate Involvement in Gynecologic Oncology
- Courageous Survivorship Conversations: A Shared Journey
Following the educational sessions, participants are invited to join interactive networking breakout rooms — an opportunity to connect, share insights, and continue the conversation in a more personal setting.
Summit Faculty

Kristina Austin, MSEd, LSW
Case Comprehensive Cancer Center
United States
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Kristina Austin is a nonprofit leader with strengths in community outreach and engagement, programming, relationship building, marketing, and social media strategy. She joined the Case Comprehensive Cancer Center as Director of Community Engagement in March 2021. In this role, Kristina works to drive the Case CCC’s efforts in reducing and ultimately eliminating the disproportionate burden of cancer by promoting health equity through systematic community participatory research and engagement. She is responsible for community outreach and engagement activities within the Case CCC in collaboration with center members, the Community Advisory Board, and community partners.
Prior to joining the Case CCC team, Kristina served as Chief Marketing Officer for The Gathering Place from 2003-2021, an organization dedicated to the support, education, and empowerment of individuals and families coping with the impact of cancer.
Kristina is a licensed social worker with a Bachelor of Arts in Psychology from the University of Cincinnati and a Master of Science in Education with a Counseling Concentration from the University of Dayton.

Runcie C.W. Chidebe, Dip., BSc., MSc.
Project PINK BLUE
Nigeria
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Runcie C.W. Chidebe is a patient advocate, global health consultant, researcher, psychologist and the executive director of
Project PINK BLUE. He is one of the leading voices advocating for Nigeria government to make cancer control a national health priority. He has been engaged in supporting women battling with cancer, hosting oncology trainings for doctors/nurses, fundraising for indigent patients, cancer awareness, founded Nigeria’s first patient navigation and the first cancer support group in Abuja, Nigeria.
He is a Member, Nigeria’s ministerial committee on the implementation of National Cancer Control Programme(2018-2022), National Cervical Cancer Programme for the Nigeria’s Federal Ministry of Health; Board Member, World Ovarian Cancer Coalition; Global Steering Committee for the Novartis Peer Navigation Programmefor metastatic breast cancer, Union for International Cancer Control (UICC) World Cancer Day Advisory Group and an external board member of the Birmingham & Lewisham African & Caribbean Health Inequalities Review, United Kingdom.
As a result of his patient advocacy work in Africa, Runcie has been recognized globally,
including nobel Nelson Mandela -Graca Machel innovation award, UICC Young Cancer Leader Award, U.S. Department of State International Visitor Leadership Program (IVLP), Catherine Peugeot Research Award, France; Global Ties U.S. Awardfor Social Innovation and Change by the U.S. Government, 4o Under 40 in Cancer globally,
Gynecologic Cancer Society, USA; Distinguished Advocacy Award by International Faces of Exchange award alongside the Prime Minister of New Zealand Jacinta Ardern and United Nations Secretary General Antonio Guteras by the U.S.
Department of Stateand many other laurels across Europe, America and across Africa.

Victoria Clare
Ovacome
United Kingdom
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Ovacome is the UK’s national ovarian cancer support charity and is a community for patients diagnosed with ovarian cancer and their families, friends and health care professionals. Ovacome supports over 6,000 people directly every year through a range of services including support groups, regional events, online workshops and a telephone support line to help those affected by the disease. Ovacome also has a suite of factually accurate and up to date, PIF tick accredited information resources which are used by health care professionals and patients alike. These are provided in print form and online and are downloaded and sent out around 70,000 times annually.
Ovacome also aims to raise awareness of the signs of ovarian cancer, as well as the lived experiences of those affected by it. The charity runs the B.E.A.T symptom awareness campaign among the general public, which highlights the four most common symptoms of the disease. Ovacome also works with health care professionals, policy makers and medical students through its educational programmes, which aim to combat the late diagnosis of ovarian cancer, highlight diversity of patient experience, and address health inequalities and barriers to cancer care.
Victoria has been the CEO of Ovacome since 2017 and has worked for charities and NGOs for 23 years. She has previously held CEO roles at Project Harar, Ethiopia and The Head and Neck Cancer Foundation, UK, and was a trustee for the Young Carers Development Trust and Chair of Trustees for Astriid. Victoria has an MSc in NGO management, charity governance and management from Bayes, City, University of London and has a special interest in addressing health inequalities and involving service users in planning and service delivery within charities.

Thomas Hofmarcher
Swedish Institute for Health Economics
Sweden
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Dr. Thomas Hofmarcher is a health economist and research director at the Swedish Institute for Health Economics (IHE). He is an expert in the health economics of cancer, with a specific focus on the economic burden of cancer, cancer care performance assessment, value of patient access to new cancer medicines, and cancer policy. His primary focus lies
in the comparative analysis of cancer care systems around the world, with vast experience in Europe, the Asia-Pacific region, the Middle East and Africa, and Latin America. He has advised the European Commission and the OECD in their work with Europe’s Beating Cancer Plan. He co-authored the OECD Country Cancer Profile 2025 for Sweden, he is the lead author of a recent OECD report on cancer medicines, and he provided data to the European Cancer Inequalities Registry of the European Commission. He also created the basic structure and collected all data for the initial version of the European Cancer Pulse of the European Cancer Organisation.

Vas James
The Eve Appeal
United Kingdom
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Vas James is the Head of Programmes at The Eve Appeal, a gynaecological cancer charity based in the United Kingdom. She oversees all charitable activity, with a focus on research and patient advocacy. A recognised leader in gynaecological cancer advocacy, Vas is a member of the ESGO ENGAGe Executive Committee and actively contributes to international patient advocacy communities, working to ensure that patients’ voices are central to cancer research, policy, and care.
With over 15 years’ experience across higher education, the third sector and private industry, Vas has led complex research and engagement programmes at institutions including University College London,
Imperial College London and the London School of Hygiene and Tropical Medicine. Her expertise spans clinical trial coordination, public engagement, health equity, and the management of large-scale research networks. She holds degrees from McGill and Concordia Universities in Canada, and brings a cross sectoral, global perspective to her work improving outcomes in women’s health

Anisa Mburu, MD
Aga Khan University Hospital
Kenya
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Dr. Anisa Mburu is a Gynecologic Oncologist currently based at the Aga Khan Hospital in
Mombasa, Kenya. She is a dedicated clinician and researcher with a strong focus on HPV
associated cancers, pediatric gynecologic oncology, and palliative care.
Dr. Mburu serves as an Expert Advisor for the World Health Organization (WHO) on cervical
cancer treatment guidelines. She is also a member of the committees developing resource stratified cervical cancer treatment and screening guidelines for the European Society of Gynecological Oncology (ESGO) and the Kenya National Cancer Control Program
respectively.
In addition to her clinical and advisory roles, Dr. Mburu is actively engaged in professional
mentorship and academic contributions. She serves as Co-Chair of the Palliative Care
Workgroup and is an Early Career Mentor with the International Gynecologic Cancer Society
(IGCS). She is also a scientific reviewer for the International Journal of Gynecological Cancer
(IJGC) and a Topic Editor for Frontiers’ Evidence-Based Implementation of Innovations in Gynecologic Oncology.
Dr. Mburu is the Founder and CEO of the SheFights Cancer Foundation, a nonprofit
organization dedicated to advocacy, awareness, and support for women affected by cancer.
She earned her medical degree from the University of Nairobi, her MBA from the University of Nicosia in Cyprus, and completed her Master of Medicine in Obstetrics and Gynecology as well as a clinical fellowship in Gynecologic Oncology at Moi University.

Karen Nakawala Chilowa
Teal Sisters Foundation
Zambia
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Karen Nakawala is a seasoned Zambian media personality, communications consultant, and global advocate for cervical cancer elimination. With over 20 years in broadcasting—including her long-standing role as presenter at PhoenixFM Zambia— Karen has used her platform to champion public health awareness, covering breast, prostate, and cervical cancer with clarity and compassion.
Following her personal battle with cervical cancer in 2019, Karen transformed pain into purpose, founding Teal Sisters Foundation Zambia, a survivor-led support network driving national efforts around prevention, screening, and HPV vaccination. Her mission is deeply personal and systemic: to ensure no woman walks alone, and no survivor is left without care.
Karen’s leadership is recognized internationally. She is the first cervical cancer survivor appointed to the International Taskforce on Cervical Cancer Elimination in the Commonwealth, and she chaired the global launch of WHO’s guidelines for screening and treatment of precancerous cervical lesions. She also sits on the African Breast Cancer Council, contributes to multiple policy and scientific committees, and co-authored “Managing Menopause After Cancer” for The Lancet Series. She’s part of the Menopause Priority Setting Partnerships (MAPS), advocating for survivor-centered solutions that address long-term health impacts.
A compelling storyteller and keynote speaker, Karen has delivered talks at major global health platforms including the United Nations General Assembly, WHO Afro Region’s 75th session, the Commonwealth Heads of Government Meeting, World Cancer Leaders’ Summit, the Gavi Replenishment Summit, and the Global Cervical Cancer Elimination Forum in Colombia. In 2024, she moderated WHO’s High-Level Engagement of People with Lived Experience, showcasing her ability to elevate survivor voices on the world stage.
Karen continues to fuse media expertise, strategic communication, and stakeholder engagement to advance women’s health, break stigma, and mobilize action. Her work embodies resilience and systemic transformation—making her a formidable force in the global movement to eliminate cervical cancer.

Achieng Otieno
Being Africa
Kenya
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With over a decade of experience at the intersection of public health advocacy, digital
communication, and social innovation, Achieng Otieno is a mission-driven leader committed to transforming communities through people-centred, data-informed solutions. As the Executive Director of Being Africa, he leads a dynamic non-profit organization dedicated to "connecting the dots" in the fight against non-communicable diseases (NCDs) through research, inclusive policy advocacy, community mobilization, and tech-enabled innovation.
Achieng’s work harnesses the power of technology for social good, amplifying
underrepresented voices and driving systemic change across Kenya’s public health
landscape. His digital communication expertise bridges grassroots storytelling with global advocacy, influencing health policies and partnerships that prioritize equity and impact.
A thought leader and strategist, Achieng continues to build coalitions across sectors,
empowering communities and young leaders to take ownership of their health futures.
Whether he's leading a national campaign, shaping a regional policy framework, or designing digital advocacy tools, his work remains anchored in justice, collaboration, and innovation.

Electra Paskett, PhD
The Ohio State University
United States
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Electra D. Paskett, PhD, MSPH, FACE, FAACR, FASCO Country USA (OHIO) Institution: Marion N. Rowley Professor of Cancer Research, The Ohio State University (OSU) | Director of the Division of Cancer Prevention and Control, College of Medicine, OSU | Professor in the Division of Epidemiology in the College of Public Health | Deputy Director for Population Sciences and Community Outreach, the OSU Comprehensive Cancer Center (CCC)| Founding Director, Center for Community Outreach and Engagement, James Cancer Hospital, Columbus, Ohio | Director, Center for Cancer Prevention and Survivorship, OSUCCC| Editor-in-Chief, Preventive Oncology and Epidemiology | Author of more than 500 original papers indexed in pubmed; H-Index 88; 32,862 citations

Eleanor Richards
University of Manchester
United Kingdom
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Dr Eleanor Richards is an Obstetrics & Gynaecology clinician and is currently pursuing a Cancer Research UK-funded PhD in the prevention of endometrial cancer for underserved communities at the University of Manchester (UK). Eleanor completed an Academic Clinical Fellowship at the University of Cambridge (UK), which built upon the skills gained during her Master’s in Public Health from the University of North Carolina at Chapel Hill (USA). Eleanor is actively engaged in the improvement of health systems and institutions, for example by participating in an expert group to inform the Royal
College of Obstetricians and Gynaecologists’ project for the recovery of gynaecology services, and by acting as the National Trainee Committee representative to the RCOG Genomics Standing Committee. Her research and public policy interests relate to the development of holistic and equitable gynaecological healthcare across the lifecourse, utilising quantitative, qualitative, and health economics
methodologies.

Sherri White, MSPOD
My Sister's Keeper
United States
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Sherri White is a respected healthcare leader, advocate, and breast cancer warrior who serves as the Founding President and CEO of My Sister’s Keeper Cleveland, a nonprofit dedicated to empowering women impacted by cancer through advocacy, wellness programs, and community-based support.
She is also the Chief of Operations and Quality for the Virginia Cardiac Services Quality Initiative (VCSQI), where she co-chairs the Health Equity Workgroup and drives national strategies to improve outcomes and eliminate disparities in care. With over 30 years of experience in healthcare administration—including leadership roles at MetroHealth, Cleveland Clinic, and University Hospitals—Sherri brings expertise in quality improvement, systems change, and patient-focused innovation.
Sherri holds a Master of Science in Positive Organizational Development and Change from Case Western Reserve University, along with certifications in Lean Process Management and Six Sigma. She also serves as a member of the Case Comprehensive Cancer Center Community Advisory Board.
A trusted partner to health systems and organizations nationwide, Sherri develops and implements supportive care programs that bridge gaps in service and address the real-life challenges faced by women with cancer. Her work ensures that patients—particularly from underserved communities—receive the advocacy, education, and resources needed to thrive during and after treatment.
At the core of her mission is a fierce commitment to health equity and ensuring that every woman feels seen, heard, and supported on her journey to healing.
Summit Co-Chairs

Rosalind Glasspool, MD
IGCS Advocacy Committee Chair
UK

Abhishek Shankar, MD
IGCS Advocacy Committee Chair
India

Diane Crawford
The Crawford Crew
United States
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Diane Crawford is the Founder and Executive Director of The Crawford Crew, a U.S.-based nonprofit organization established in 2009 to raise awareness, provide education, and support prevention efforts for HPV-related cancers. As a passionate advocate and leader in the cervical cancer elimination movement, Diane brings lived experience, strategic vision, and grassroots impact to her role as co-chair of the 2025 IGCS Global Summit.

Dr. Zainab Shinkafi-Bagudu MBBS MRCPCH
Nigeria
Sponsors


Previous Patient Summits
Previous Patient Summits:
2024 IGCS-IGCAN Gynecologic Cancer Survivor-Caregiver Summit
Dublin, Ireland
October 15, 2024
Click here to view advocacy posters
2023 Virtual Advocacy Survivor Caregiver Summit
Virtual Event
September 25, 2023
2022 Advocacy Survivor Caregiver Summit
New York City, USA
September 28, 2022
2021 Virtual Advocacy Survivor-Caregiver Summit: Connected & Empowered
Virtual Event
September 25, 2021
2020 Survivor-Caregiver Public Summit: Women4Women
Virtual Event
September 26, 2020
Yes to Empowerment: Survivor-Caregiver Symposium
Rio de Janeiro, Brazil
September 21, 2019
Eriko-Aotani Patient-Caregiver Symposium
Kyoto, Japan
September 13, 2018
Ovarian Cancer Patient Summit
Lisbon, Portugal
October 28-29, 2016
Knowledge is Power Gynaecological Cancer Forum
Melbourne, Australia
November 8, 2014
Ovarian Cancer Symposium
Vancouver, Canada
October 14, 2012